| dravet.eu | |
| 网站标题： | Dr*et Europe | Dr*et Syndrome European Federation |
| 网站简介： | Dr*et Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy. Dr*et Syndrome European Federation (DSEF) is a non-profit organisation, a federation of European organisations, active in the field of Dr*et Syndrome and driven by patients and patients’ caregivers. Together we h*e built a strong European community of people living with Dr*et Syndrome. We are this community’s voice and, directly or indire |
| 关键字： | Syndrome European Federation Sindrome di Europa DSEF non-profit organisation evere Myoclonic Epilepsy of Infancy epilepsy people living with Syndrome |
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